Wednesday, November 20, 2013

Know the Glow

Tonight's post is a quick public service announcement. There is a saying amongst the retinoblastoma community known as "Know the Glow." It's a simple test or observation any parent or caregiver can do to determine if a child is at risk- no medical degree required.
It's as simple as taking a photograph - with the flash on and red light feature off. That's it. 

Now, go test it out. It only takes a moment! Watch photographs of your children over time too for any changes. Ania used to take regular photos with red eye up until her cancer diagnosis October 2013

Healthy example of Ania at about 18 months ( December 2011)
No white glow- red eye is a good sign! 

And now Ania (October 2013)
Whiteness in left pupil: evidence of a problem.


God Bless,


  1. Erica, thank you so much for this wonderful blog. John and I are always anxious to hear about your little Warrior and appreciate the effort and time it takes to keep the blog current. Your beautiful family is always in my prayers. May the white light of protection surround you all. Love, Marpee

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